This is a venting post.... why oh why won't physicians listen to their patients?. Why can't they get that I know my own body better than anyone. It seems that some are worried about covering their asses, rather than truly caring if a patient is feeling well. ( sorry if this offends my readers who are wonderful & caring Physicians)

I have this condition, I was born with it... it sucks.Congenital Pan-Hypopituitarism is a very rare disorder consisting of multiple deficiencies of hormones. My pituitary is shot and they don't call it the master gland for nothing. So I have been feeling shitty since last fall... hypo symptoms out the ying yang- fatigue, sluggish, memory issues, dry skin, constipation,hair falling out, weight gain despite working out & eating right, dry skin, joint pain, female issues- like only one period a year, diabetes insipidus- the list goes on & on.

I begged to switch to armour, I begged to add cytomel to my synthroid regimen, I begged for an increase of thyroid meds. Everything in me was SCREAMING that I needed more thyroid meds. I instead been given more & more cortisone for my adrenal insufficiency.
I am sick & tired of feeling sick & tired. Finally my endo says after failing to get a reflex " I think you need more thyroid meds".. I wanted to scream " YOU THINK?"... what in the hell have I been begging for since December? All my symptoms & labs clearly point to that. She wanted to focus on one issue at a time- my adrenals first, because that was the most important in her eyes and life threatening.


She can give me cortisone until the cow's come home, but it's not helping my thyroid symptoms one bit. I do think she cares, but is being overly cautious & not really getting how shitty I feel. I told her today in tears that If she told me to stand on my head and drink prune juice I would... I just need to feel better. I feel like I am slugging through molasses and missing out on my life.


So fast forward through my appointment.. It is decided upon finally that I do in fact need more thyroid meds. I ask " so are you giving me a script or calling it in? My doc asks when will I be done with my current script... that is two weeks from now... I want to start feeling better NOW and she wants to wait until my labs come back & script runs out... is she nuts? She clearly does not get it.



I am getting my fasting labs first thing in the morning and calling for my increase in meds to begin ASAP. Unless you live through this, Like my hero Y, it's really hard to grasp how it affects your entire life.

Either I give up & except what they are offering me, or I fight & advocate for myself. I just don't have the energy to do either